Typically, when people hear the word disability, they tend to think of disabilities they can see. However, there are people with less recognized disabilities or medical conditions, most invisible at a glance.
I do not personally identify with the word disabled, but I do battle a mostly invisible medical condition. During my freshman year, I found out that I have chronic soft tissue edema. It is a long-term swelling condition that affects my lower legs. To help limit swelling, I wear compression socks, take supplements, and engage in exercises that promote blood circulation.
When I first started to wear compression socks, I was embarrassed. They are knee-length and look like tights. If I wore shorts or leggings, I would ditch the compression socks because they are noticeable. I worried about people asking questions or making assumptions. I did not want anyone to know at first that I was struggling with my health.
As I got more confident with my body and medical condition, I started getting asked questions and weird glances. When I took P.E., I would have to sit out of class sometimes due to pain or extreme swelling. I always looked fine, but I was not. I am often asked, ‘What is wrong with you?’ and ‘Why did you get to sit out during this activity?’. Those questions are hard for me to answer. Most of the time, the answer is that I have a medical condition. Some people asked more questions, others just stopped asking and walked away awkwardly.
I have had people ask my mom questions about what is wrong with me, while I am standing right between them. Some people act as if I am invisible, others as if I am a unique zoo animal.
I miss school often for doctor’s appointments. Making up that work can be stressful and sometimes difficult. I have had to limit some of my favorite activities to a minimum while I still figure out how to balance my health. Some people do not understand that I struggle with something invisible to the eye.
As I continue to have swelling in my legs, I have struggled with my mental health, too. I have seen a variety of therapists, some I worked well with, others not.
Ultimately, I am comfortable with myself and my appearance. I am still learning to be okay with my medical condition and how it affects me. I want to be able to live my life, and while it will not be stereotypical, it will be filled with adventures.
Understand that no one has the same experiences with medical conditions or disabilities. Some welcome the questions, while others do not want to discuss their health or experiences.
If you know or see someone who has a medical condition, just be nice. Kindness is the best power you can have. We are not an amazing spectacle to entertain you or make fun of; we are human beings. We have lives and feelings, just like everyone else.
